SF AIDS Fdn: BETA 7/98 -- HIV and Children: The Nutrition Story -- Part 3

Published in the Bulletin of Experimental Treatments for AIDS July 1998 issue, by the San Francisco AIDS Foundation.

HIV and Children: The Nutrition Story
Part 1
Part 2
Part 3

July 1998 Table of Contents

Main Page

HIV and Children: The Nutrition Story -- Part 3

By Cade Fields-Gardner, MS, RD/LD

Getting Support

Parents and other people providing care for HIV-infected children should be aware of the support that is available to them. There is much left to learn about effective treatment and the best possible care for pediatric HIV disease. As in adult HIV disease, the team concept allows the child and their loved ones, along with the healthcare team, to learn the best approach for each individual. It is always best to be armed with as much knowledge as possible. Local children’s hospitals and pediatric health care specialists can identify resources for information and care. See below for specific resources.

Final Thoughts

Sometimes it may seem that it takes more than a village to raise the child with HIV disease. The real goal is to make life as happy, healthy, independent, productive, and lengthy as possible for children who are infected and/or affected by HIV disease.

Other News on Children and HIV

Resources

The CDC National AIDS Clearinghouse provides database searches for special HIV and AIDS-related topics. Standard searches, including those on pediatric and adolescent issues, are routinely prepared.
Address: P.O. Box 6003, Rockville, MD 20849-6003
Phone: 800-458-5231

The National Pediatric and Family HIV Resource Center offers a wide range of services including a complete educational curriculum for providers, listings of resources throughout the U.S. and Puerto Rico, and technical or consultation assistance.
Address: 15 South Ninth Street, Newark, NJ 07107
Phone: 800-362-0071

The Francois-Xavier Bagnoud International Pediatric HIV Training Program provides for training of care providers and families of children with HIV. It also provides an informational site for families to explore.

A website at www.kidsconnect.org provides easy-to-understand information about HIV for children and teens.

Publications on nutrition for newborns, children and teens are available from a number of sources, including the American Dietetic Association (800-277-1600) and the National AIDS Clearinghouse of Canada (613-725-3434).

Pediatric HIV/AIDS Programs by State

State	Organization	Contact Info
Alabama	Pediatric HIV/AIDS Health Care Demonstration Program, University of Alabama at Birmingham	205-934-7883 205-939-9400
California	Project AHEAD San Francisco	415-753-7780
	Children’s Hospital, Oakland Oakland	510-428-3178
	Public Health Policy, LAC Department of Health Los Angeles	213-351-8146
	Los Angeles Pediatric AIDS Network (LAPAN) Los Angeles	213-669-5616
	University of California at San Diego La Jolla	619-534-7170
Colorado	Children’s Hospital HIV Program Denver	303-861-6751
Connecticut	Connecticut Pediatric AIDS Health Care Demonstration Project Hartford, CT	860-232-3319
District of Columbia	D.C. Comprehensive HIV Intervention & Prevention Services for Families Washington, DC	202-686-0567
Florida	University of Miami Pediatric Demonstration Project	305-243-6522
	Comprehensive Pediatric AIDS Project Fort Lauderdale	954-728-8080 954-728-1040
	Tampa Bay Pediatric/Family Program Tampa	813-974-6643 813-974-7663
	Orlando Regional Healthcare System Orlando	407-841-5111 x1169
Georgia	Georgia Department of Human Resources Atlanta	404-657-3110
	Ryan White Title IV Project Atlanta	404-876-4788
Illinois	Cook County Women & Children with HIV Program Chicago	312-633-5080
Louisiana	Pediatric AIDS Program New Orleans	504-821-4611
Maryland	MD Pediatric HIV/AIDS Health Care Demonstration Project Baltimore	410-767-5087
Massachusetts	Division for Children with Special Health Care Needs	617-624-5070 617-624-5954
	Boston Pediatric and Family AIDS Project Roxbury	617-442-8800
Michigan	Michigan Department of Community Health Lansing	517-335-8982
	Michigan Department of Community Health Detroit	313-256-3578
Missouri	Project A.R.K. (AIDS/HIV Resource for Kids) St. Louis	314-535-7275
New Hampshire	Dartmouth-Hitchcock Medical Center Lebanon	603-650-5454
New Jersey	New Jersey Statewide Network of Pediatric HIV Treatment Centers Trenton	609-292-1078
New York	Northern Manhattan Women and Children HIV Demonstration Project New York	212-305-3616
	Lower New York Consortium for HIV-Affected Families New York	212-263-6427
	The Family Center New York	212-766-4522
	Model Comprehensive Health Care Program for Adolescents Bronx	718-882-0322 718-882-0023
	Dominican Sisters Family Health Service, Inc. Bronx	718-665-6557
	New York City Pediatrics HIV/AIDS Comprehensive Center Albany	518-473-8427
	Brooklyn Pediatric AIDS Network Brooklyn	718-270-3825
	Elmhurst Hospital Center Elmhurst	718-334-6058
	Bronx Pediatric AIDS Consortium Bronx	718-518-5764 718-430-2940
	Children’s Medical Center at Stony Brook Stony Brook	516-444-7692
North Carolina	Metrolina AIDS Project Charlotte	704-333-1435
Ohio	Family AIDS Clinic and Educational Services (FACES) Columbus	614-722-4451 614-722-4460
Pennsylvania	Circle of Care Project Philadelphia	215-985-2616 215-985-2657
Puerto Rico	Puerto Rico Pediatric AIDS Project San Juan	787-274-5591 787-274-5593
Rhode Island	Family AIDS Center for Treatment and Support (FACTS)	401-521-3603
South Carolina	South Carolina Children’s AIDS Care System Columbia	803-734-3324
Texas	Tarrant County Pediatric AIDS Demonstration Project Fort Worth	817-534-0814
	Tarrant County Pediatric and Family HIV/AIDS Project Fort Worth	817-536-1160
	Pediatric AIDS Network of Dallas (PANDA) Dallas	214-640-5897 214-640-2329
	The South Texas AIDS Center for Children/Families San Antonio	210-567-7437 210-567-7412
	Houston Regional HIV/AIDS Resource Group Houston	713-526-1016
Washington	Seattle-King County Pediatric AIDS Project Seattle	206-720-4319 206-720-4300
Wisconsin	Wisconsin HIV Primary Care Support Network Wauwatosa	414-456-4199 414-266-3158

References

Archer SB and others. Current uses and abuses of total parenteral nutrition. Advanced Surgery 29:165-189. 1996.

Beau JP and L Imboua-Coulibaly. Dehydration: an important factor of mortality in human immunodeficiency virus (HIV) seropositive malnourished children. Bulletin of the Society of Pathology Exotic 90:71-73. 1997.

Centers for Disease Control and Prevention. 1994 revised classification system for human immunodeficiency virus infection in children less than 13 years of age. Morbidity and Mortality Weekly Report 43(#RR-12):1-10. 1994.

Centers for Disease Control and Prevention. Fax Information Service documents 260210, 206220, 260200, and 206201.

Centers for Disease Control and Prevention. Guidelines for the use of antiretroviral agents in pediatric HIV infection. Morbidity and Mortality Weekly 47(# RR-4). April 17, 1998.

Cunningham-Rundles S and others. Micronutrient and cytokine interaction in congenital pediatric HIV infection. Journal of Nutrition 126:2674S-2679S. 1996.

Hirschfeld S. Dysregulation of growth and development in HIV-infected children. Journal of Nutrition 126:2641S-2650S. 1996.

Jain VK and RK Chandra. Does nutritional deficiency predispose to acquire immune deficiency syndrome? Nutrition Research 4:537-542. 1984.

Lambert JS. Pediatric HIV infection. Current Opinions in Pediatrics 8:606-614. 1996.

McKinney and others. A multicenter trial of oral zidovudine in children with advanced human immunodeficiency virus disease. New England Journal of Medicine 324:1018-1025. 1991.

Miller TL and others. Malnutrition and carboydrate malabsorption in children with vertically transmitted human immunodeficiency virus1 infection. Gastroenterology 100:1296-1302. 1991.

Miller TL and others. Growth and body composition in children infected with the human immunodeficiency virus-1. American Journal of Clinical Nutrition 57:5880592. 1993.

Miller TL and others. Gastrostomy tube supplementation for HIV-infected children. Pediatrics 96:696-702. 1995.

Miller TL. Malnutrition: metabolic changes in children, comparisons with adults. Journal of Nutrition 126:2623S-2631S. 1996.

National Academy of Sciences. Recommended Dietary Allowances. 10th edition. National Academy Press, Washington, DC. 1989.

Oleske JM and others. Historical perspectives on the evolution in understanding the importance of nutritional care in pediatric HIV infection. Journal of Nutrition 126:2616S-2619S. 1996.

Peters VB and others. Growth failure as the first expression of malnutrition in children with human immunodeficiency virus infection. Mount Sinai Journal of Medicine 54:104. 1998.

USDHHS HRSA, Office of Maternal and Child Health, Division of Services for Children with Special Health Needs. Pediatric HIV/AIDS Projects. Program guide. Document 7046W. 1990.

Winter H. Gastrointestinal tract function and malnutrition in HIV-infected children. Journal of Nutrition 126:2620S-2622S.

Page last updated 9 July 1998