Medicare
Medicare is a federal health insurance program that covers both seniors and people with permanent disabilities. Most individuals who are over 65 years of age are automatically entitled to Medicare if they are eligible for and receive Social Security. People under the age of 65 may be eligible for the program if they are deemed disabled due to a physical or mental impairment that prevents them from working. There is, however, a waiting period of 29 months (two years and five months) before a person who is deemed disabled becomes eligible for these benefits.
Medicare is the second largest source of federal spending for HIV/AIDS care in the United States, second only to Medicaid. It is estimated that 60,000 to 80,000 people with AIDS are beneficiaries of the program. Most Medicare beneficiaries with HIV/AIDS are under 65 and qualify as a result of their disability status (after having gone through the lengthy waiting period discussed above). For more detailed information on Medicare and HIV/AIDS, please see the Kaiser Family Foundation fact sheet [PDF] on this issue.
With the passage of the Medicare Modernization Act of 2003, Congress created a prescription drug benefit for Medicare beneficiaries. This drug benefit will take effect January 1, 2006 and is referred to as Medicare Part D. This represents the largest shift in public benefits in forty years and will have a major impact on people living with HIV/AIDS.
For many individuals, the way in which they receive their drugs will change substantially when this program goes into effect on January 1, 2006. In particular, individuals who are "dually eligible" for both Medicare and Medicaid (Medi-Cal in California) will no longer be able to receive drugs through Medi-Cal and will instead be required to obtain drug coverage through Medicare Part D. It is estimated that over 13,000 Californians living with HIV/AIDS are dual eligibles.
Unfortunately, Medicare Part D will leave many individuals worse off because they will have to meet a set of out-of-pocket expenses that are currently covered by Medi-Cal and/or the AIDS Drug Assistance Program (ADAP). Fortunately, the San Francisco AIDS Foundation, Project Inform and other advocates were successful in reducing some of these potential costs by convincing the state to allow ADAP to pay the deductibles and co-payments required of Medicare Part D beneficiaries who are dignosed with HIV. Some Part D beneficiaries, however, will have to pay premiums and ADAP will no longer be able to pay Medi-Cal share-of-cost for those who are dual eligibles.
Many of the documents and materials included below provide additional information on the implications of this new benefit and the complex ways in which it interacts with both Medi-Cal and ADAP.
Key Materials
- Medicare Part D Brochures
A series of brochures created by the San Francisco AIDS Foundation and Project Inform to assist Medicare beneficiaries living with HIV/AIDS in California to understand the new Medicare drug benefit (Medicare Part D) and how it interacts with Medi-Cal and California's AIDS Drug Assistance Program.
- How to Compare Medicare Prescription Drug Plans [ on www.medicarerights.org]
A checklist developed by the Medicare Rights Center to assist Medicare beneficiaries select a Medicare drug plan.
- CMS Medicare Prescription Drug Finder [ on www.medicare.gov]
Developed by CMS, this online tool is meant to assist Medicare beneficiaries: (1) learn about the new Medicare prescription drug coverage; (2) find and compare prescription drug plans that meet individuals' personal needs; and (3) enroll in a prescription drug plan.
- Medicare Drug Benefit: HIV Enrollment Tool Kit [262K, 13-page pdf]
Tool kit designed by the Treatment Access Expansion Project and other groups to assist people living with HIV/AIDS understand the new Medicare drug benefit and how to select a prescription drug plan.
- Policy & Politics: Medicare Drug Coverage [page on www.sfaf.org]
Article by Jeffrey S. Crowley, project director of the Health Policy Institute at Georgetown University, "Medicare Prescription Drug Coverage: Preparing for January 1, 2006," BETA, Summer 2005
- Medicare Part D: Getting Californians Ready [81K, 19-page ppt]
PowerPoint presentation by Anne Donnelly, policy director for Project Inform, "Medicare Part D: Getting Californians with HIV/AIDS Ready," July 2005.
- New Medicare Prescription Drug Benefit (Part D) [161K, 15-page pdf]
Issue Brief by the San Francisco AIDS Foundation and Project Inform, "New Medicare Prescription Drug Benefit (Part D): Information for Californians Living With HIV/AIDS," July 2005.
- CMS Tip Sheet: People with Medicare and HIV/AIDS [505K, 3-page pdf]
Centers for Medicare and Medicaid Services Tip Sheet, "People with Medicare and HIV/AIDS: New Medicare Prescription Drug Coverage," July 5, 2005.
- Medicare Drug Benefit & CARE Act Grantees [page on www.hrsa.gov]
Health Resources and Services Administration (HRSA) information and materials about the Medicare Part D prescription drug benefit and its implications for Ryan White CARE Act grantees.
- Medicare Part D & Ryan White CARE Act, HRSA [page on www.hrsa.gov]
- Kaiser Family Foundation Medicare Policy Project [ on www.kff.org]
The Medicare Policy Project conducts research and analysis on current Medicare policy issues, monitors key trends, and produces fact sheets, resource books and reports to inform policy discussions.
- Issue Brief: Financing HIV/AIDS Care, KFF May 2004 [PDF on www.kff.org]
Kaiser Family Foundation Issue Brief, "Financing HIV/AIDS Care: A Quilt with Many Holes," May 2004.
- Medicare Prescription Drug Coverage, KFF, Dec. 03 [PDF on www.kff.org]
HIV Policy Watch articles on this issue
OUTReach articles on this issue
Links to other key organizations involved in this issue
- Centers for Medicare and Medicaid Services (CMS)
The Centers for Medicare & Medicaid Services (CMS) is a federal agency within the U.S. Department of Health and Human Services. CMS administers the Medicare program and works in partnership with the states to administer Medicaid and the State's Children's Health Insurance Program (SCHIP).
- CMS Partner Center
Resources and tools for CMS partners, including advocacy groups and other stakeholders. Includes links to information and resources about the Medicare drug benefit.
- Families USA
Families USA is a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans. Working at the national, state, and community levels, Familes USA works on a range of issues, including Medicaid, Medicare, health care reform and related issues.
- Kaiser Family Foundation
The Henry J. Kaiser Family Foundation is a non-profit, private operating foundation focusing on the major health care issues facing the nation. The Foundation is an independent voice and source of facts and analysis for policymakers, the media, the health care community, and the general public.
- Medicare Rights Center
Medicare Rights Center (MRC) is the largest independent source of health care information and assistance in the United States for people with Medicare.
- Project Inform
Project Inform is a national, nonprofit, community-based organization working to end the AIDS epidemic. The agency works to inform people living with HIV, their caregivers, and their healthcare and service providers about the treatment and monitoring of HIV disease and to advocate for appropriate policies, legislation and funding for HIV research, treatment and care.
- Treatment Access Expansion Project
Established in 1998, TAEP's mission is to improve access to early and comprehensive treatment ensuring that individuals living with HIV get the care they need.
Page last updated: 9/12/2007